Articles
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Four Pandemic Americas: Infinite Choices, Few Choices, Pseudo-Choice, and No Choices at All
“Limited access to quality healthcare means Black and brown people experience higher levels of disability and are more likely to need long-term care. Yet insufficient community-based services in our neighborhoods cause us to be placed in nursing homes, where we’re more likely to contract and die from Covid-19.”
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Obstacles to access
“People of color living with multiple sclerosis (MS) … confront issues with lack of access to healthcare and participation in research projects, as well as language and cultural differences. But many people of color are advocating for themselves and their communities to improve their care.”
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What’s Love Got to Do With It? An Argument Against Institutionalizing People with Severe Physical Disabilities
It is probably no surprise that there’s a bias toward placing severely disabled people in nursing homes when community-based care is, most often, preferred, less expensive, and of better quality. I have much more agency when managing the women who come into my home than I do when interacting with nursing home staff.
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How Home Care Makes it Possible to Manage My Writing Career and MS
It’s been another long, but fulfilling day thanks to my home care aides. It began with attending a Zoom meeting for writers, which is helping me recapture my love of creative writing and journalism after a several year hiatus from writing. I was grateful to find an online group I can meet with nearly every weekday, and it felt wonderful to return to my morning writing ritual.